Skin Support Groups

one hand holding another with Vitiligo skin support group

This list is not meant as an endorsement or promotion of any kind. It's simply to educate and pass on information. My hope is to assist you in your search and cut out a few steps for you. I would like you to find support if you need it.

AIDS/HIV

A charity in the UK where you can discuss living with a health condition.

Meet up with others in your location, has the largest HIV group. For help with your career or business.

NAM is charity based in the UK. there are other websites linked. find info on HIV and AIDS.

Alopecia (hair loss)

Providing information on prevention and treatment for those with hair loss.

Not only for hair loss has a number of support programs for certain conditions including; rosacea, eczema, dry skin etc.

Cicatricial Alopecia Research Foundation (C.A.R.F.)

Support and meetings, tools and haircare tips.

Lady Alopecia  blogging about her journey

Advice from an actual bald lady (Emma). She has been blogging for awhile now on her condition.

Women's hair loss project  blog support WHLP                  Help-Hope-Understanding

lg blue graphics (1)

Anxiety

Anxiety and Depression

Anxiety and Depression Association of America

https://adaa.org/adaa-online-support-group

Anxiety and Phobias

https://www.inspire.com/groups/mental-health-america/topic/anxiety-and-phobias/?origin=tfr

Arthritis

Creaky Joints

Inspire, empower and support arthritis patients

creakyjoints.org

Birth Defects

March of Dimes

Tools and resources

https://www.marchofdimes.org/

National Birth Defects Prevention Network

Offers publications and webinars

https://www.nbdpn.org/

WIC Works Resources System

Government program

https://wicworks.fns.usda.gov/

Blind (Vision loss)

American Council of the Blind

E-mail info@acb.org

https://www.acb.org/

American Foundation for the Blind (AFB)

http://www.afb.org

National Federation of the Blind

Email: nfb@nfb.org

Body-Focused Repetitive Behavior

This includes trichotillomania ( hair pulling), dermatillomania/excoriation (skin picking) and onychophagia (nail biting). (Also subtypes).

The TLC Foundation

(The TLC Foundation has given permission to list them. They offer many support groups for these disorders and helpful information). 10/05/2020

https://www.facebook.com/groups/tlcbfrb/

https://www.facebook.com/groups/TrichyParenting/about/

contact: trichrecovery@yahoo.com

website: http://www.hpanonymous.org

contact: support@osparecovery.org

website: http://www.osparecovery.org

Visit www.BeautyByCheryn.com or call 866-324-0908 now!

For a free consultation please visit: www.chailledefaria.com or email Chaille directly at  chaille@chailledefaria.com

For more information, please visit: www.habitware.com

Web: www.hasacademy.org

Email: info@hasacademy.org

Phone: (970) 644-5333

 www.JoanKaylor.com  Online Coaching and Counseling

Website: ocdla.com/telephone-online-therapy-ocd-anxiety/

Email: director@ocdla.com

310-824-5200 x4

Website: www.lmullertherapy.com

Email: lindsey@lmullertherapy.com

For US calls: 561-299-4911

www.biomaterix.com

biomaterix@gmail.com

Website: www.slightlyrobot.com

Email:  matt@slightlyrobot.com

Website: www.skinpick.com

Email: info@skinpick.com

Website: www.StopSkinPickingCoach.com

Email: support@stopskinpickingcoach.com

StopPicking.com

StopPulling.com

www.TheWigEmporium.com

CustomerService@thewigemporium.com

trichstop.com

http://twirlandsoothe.weebly.com

https://www.bfrb.org/find-help-support/find-a-salon

Hair Pulling

https://www.stoppulling.com/

https://trichotillomaniablog.com/  Trichotillomania Blogger. Naturally-Minded.  Jesus Obsessed. Empath by Lesley

lesley@trichotillomaniablog.com

trichyhabit.tumblr.com trichy blog for support

Skin Picking

https://www.bfrb.org/find-help-support/find-a-support-group       (TLC)

https://www.bfrb.org/find-help-support/find-a-salon (TLC)

https://pickingme.org/resources/online-support-group.html     US

https://www.stoppicking.com/

@pickingmefdn (Picking Me Foundation)

Breast Cancer

Breast Cancer Coalition

Raising Awareness of Male Breast Cancer

 

Healthtalk

Support groups for breast cancer in men

National Breast Cancer Foundation

2600 Network Blvd.  Suite 300  Frisco  TX   75034

https://meditationstudioapp.com/

Physical Activity, Wellness & Nutrition

Breast Cancer Support Group

https://www.cancer.org/latest-news/common-questions-about-the-new-coronavirus-outbreak.html     NBCF’s

https://www.nationalbreastcancer.org/covid-19-nbcf-response/                             donate

Susan G. Komen

Support groups for breast cancer

Breast Implants

http://www.discoverbreastimplantillness.com

Cancer

National Cancer Institute

www.cancer.gov

http://www.nci.nih.gov

 

Mend Together 

Cleft Palate-craniofacial

Supportsmiletrain.org

1-800-572-1149

(ACPA) American Cleft Palate-craniofacial Association

info@acpa-cpf.org

 

Cutting

crisis-text Line

Healthy Place

Recover Your Life

Reach Out   Ages 14-25

S.A.F.E. Alternatives (Self Abuse Finally Ends)

Self-Injury

Diabetes

American Diabetes Association

https://professional.diabetes.org/content-page/diabetes-support-resources

WI

ADAWI@diabetes.org

the Diabetes Site

https://blog.thediabetessite.greatergood.com/

Centers for Disease Control

https://www.cdc.gov/diabetes/prevention/index.html

Dermatology

The International Dermal Institute

Postgraduate Education in Professional Skincare

1535 Beachey Place, Carson, CA 90746

idi.corporate@dermalogica.com

888-292-5277

Eczema

National Eczema Association

https://www.inspire.com/groups/national-eczema-association/

National Eczema Society

helpline@eczema.org    https://eczema.org/

Zainab Danjuna on YouTube

https://www.youtube.com/user/iambeezee/videos

Just a regular girl from London, with an itch that needed to be scratched (Eczema)

Glaucoma

Glaucoma Research Foundation

http://www.glaucoma.org accessed 01/24/2021

Glaucoma UK

http://glaucoma.uk accessed 01/24/2021

links to the site are encouraged & permission is not required

International Glaucoma Association

http://glaucoma-association.com accessed 01/24/2021

The Glaucoma Foundation

http://glaucomafoudation.org accessed 01/24/2021

online discussion group (APUP) Adult Patients Under Pressure

info on clinical Glaucoma trails

The National Eye Health Education Program

http://nei.nih.gov/nehep accessed 01/24/2021

Hearing Loss Association of America

Homepage - Hearing Loss Association of America

A charitable organization for those with hearing loss.

HIV/AIDS

National HIV/AIDS Hotline

(800) 342-2437

(800) 344-7432 (Spanish)

http://www.ashastd.org

 

Hyperhidrosis (Excessive Sweating)

International Hyperhidrosis Society

 

My Life as a Puddle

Maria Thomas blog launched in 2011 to raise hope and awareness one drop at a time.

Lupus

Lupus Foundation of America

Working to improve quality of life for those with lupus.

Lupus Information Packet

 

Lupus Research Alliance

Largest nongovernmental, nonprofit funder of lupus research worldwide. Advancing scientific research for a cure.

US in Lupus

Support lupus patients in US

usinlupus.com

Lyme disease

U.S. National Lyme disease

(The U.S. National Lyme disease (lymedisease.org) has given permission for this listing). 09/15/2020

https://www.lymedisease.org/

https://www.lymedisease.org/lyme-disease-support-groups/

Lyme disease association

research, education, prevention and patient support

https://lymediseaseassociation.org/resources

Melanoma

Cure Today

Stories of Lose and Survival with Melanoma

Melanoma Research Foundation

Melanoma Research Alliance

Find stories of patients and survivors.

 

Skin Cancer Foundation

Through the Lens

Menopause

North American Menopause Society

http://www.menopause.org

Disclaimer: This website is for informational purposes and not for diagnosis. More details.

Men's Health

Men’s  Health Network

Email: info@menshealthnetwork.org

https://www.menshealthnetwork.org/

Movember Foundation

https://us.movember.com/mens-health/mental-health

National Alliance on Mental Illness

https://www.nami.org/help

Multiple Sclerosis

National Multiple Sclerosis Society

http://www.nmss.org

Piercings

Association of Professional Piercers

info@safepiercing.org

Home

https://www.memberleap.com/members/directory/…    (By State directory)

Psoriasis

The International Federation of Psoriasis Associations

info@ifpa-pso.com SWEDEN

National Psoriasis Foundation

(National Psoriasis Foundation has given permission for this listing though it was not needed.) 09/14/2020

https://www.psoriasis.org/

Helpline 800-723-9166

https://www.psoriasis.org/talk-psoriasis/  support for psoriasis and psoriatic arthritis

Chronic Pain Kit for tips and resources to help you:

https://www.psoriasis.org/chronic-pain-kit/

education@psoriasis.org

getinfo@psoriasis.org

https://www.psoriasis.com/      (Free beneath the surface kit)

The Psoriasis Association

mail@psoriasis-association.org.uk

Email: mail@psoriasis-association.org.uk

Rosacea

International Rosacea Foundation

http://www.internationalrosaceafoundation.org/

National Rosacea Society

This organization has been around many years, doing research and providing information pertaining to rosacea. I was once on the newsletter mailing list.

(National Rosacea Society has given permission for this listing). 06/11/2020

https://rosacea.org

Rosacea Support

http://rosacea-support.org this is a support forum started Oct 1998 by David Pascoe. The website also contains information on rosacea.

Talonted Lex

another rosacean who has a blog

Rosacea-Skin Positivity-Beauty

Home - Talonted Lex

Advice Support Community

Skin Camouflage

British Association of Dermatologist

https://www.bad.org.uk/for-the-public/patient-information-leaflets/skin-camouflage

Email: admin@bad.org.uk

British Association of Skin Camouflage

https://skin-camouflage.net/

Skin Cancer

skincancer.org offers Robins Nest program for support and guidance to help you through your skin cancer diagnosis.

 

Spiritual

OHBAAT (One Human at a Time)

"Turning your New Normal into the ideal life". A religious based site to support your life after Post Corona. "Personal Media".

Thyroid Conditions

American Thyroid Association

https://www.thyroid.org/

a public site accessed 01/11/2021

If a description is to be provided with the link, ATA® would prefer the following wording:

The American Thyroid Association® (ATA)® , founded in 1923 as the American Goiter Association, is a nonprofit professional medical society comprised of physicians and scientists dedicated to enhancing the understanding of thyroid physiology and pathophysiology, improving diagnosis and treatment of thyroid diseases, and promoting the education of physicians, patients, and the public about thyroid disorders.

In the 95 years of its existence, the ATA has grown to more than 1500 clinicians and research scientists in the field of thyroidology. Thyroid diseases are among the most common disorders of the endocrine system, affecting almost 13 million Americans alone. Advances in understanding the causes and improving the clinical management of thyroid diseases are evolving at a rapid pace in the current era of biomedical discovery.

Hypothyroid Mom

mom blogging about hypothyroidism

contact@hypothyroidmom.com

https://hypothyroidmom.com/                     accessed 01/09/2021

Thyroid Federation International

https://thyroid-fed.org/   accessed 01/09/2021

Vitiligo

E-mail:   info@skin-camouflage.net

www.skin-camouflage.net

My Vitiligo Support Team

MyVitiligoTeam is not a medical referral site and does not recommend or endorse any particular Provider or medical treatment.
No information on MyVitiligoTeam should be construed as medical and/or health advice.

https://www.myvitiligoteam.com/

 

Wound Care

British Association

for support My Wound

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