Skin Support Groups
This list is not meant as an endorsement or promotion of any kind. It's simply to educate and pass on information. My hope is to assist you in your search and cut out a few steps for you. I would like you to find support if you need it.
AIDS/HIV
A charity in the UK where you can discuss living with a health condition.
Meet up with others in your location, has the largest HIV group. For help with your career or business.
NAM is charity based in the UK. there are other websites linked. find info on HIV and AIDS.
Alopecia (hair loss)
Providing information on prevention and treatment for those with hair loss.
Not only for hair loss has a number of support programs for certain conditions including; rosacea, eczema, dry skin etc.
Cicatricial Alopecia Research Foundation (C.A.R.F.)
Support and meetings, tools and haircare tips.
Lady Alopecia blogging about her journey
Advice from an actual bald lady (Emma). She has been blogging for awhile now on her condition.
Women's hair loss project blog support WHLP Help-Hope-Understanding
Anxiety
Anxiety and Depression
Anxiety and Depression Association of America
https://adaa.org/adaa-online-support-group
Anxiety and Phobias
https://www.inspire.com/groups/mental-health-america/topic/anxiety-and-phobias/?origin=tfr
Arthritis
Creaky Joints
Inspire, empower and support arthritis patients
Birth Defects
March of Dimes
Tools and resources
National Birth Defects Prevention Network
Offers publications and webinars
WIC Works Resources System
Government program
https://wicworks.fns.usda.gov/
Blind (Vision loss)
American Council of the Blind
E-mail info@acb.org
https://www.acb.org/
American Foundation for the Blind (AFB)
http://www.afb.org
National Federation of the Blind
Email: nfb@nfb.org
Body-Focused Repetitive Behavior
This includes trichotillomania ( hair pulling), dermatillomania/excoriation (skin picking) and onychophagia (nail biting). (Also subtypes).
The TLC Foundation
(The TLC Foundation has given permission to list them. They offer many support groups for these disorders and helpful information). 10/05/2020
https://www.facebook.com/groups/tlcbfrb/
https://www.facebook.com/groups/TrichyParenting/about/
contact: trichrecovery@yahoo.com
website: http://www.hpanonymous.org
contact: support@osparecovery.org
website: http://www.osparecovery.org
Visit www.BeautyByCheryn.com or call 866-324-0908 now!
For a free consultation please visit: www.chailledefaria.com or email Chaille directly at chaille@chailledefaria.com
For more information, please visit: www.habitware.com
Web: www.hasacademy.org
Email: info@hasacademy.org
Phone: (970) 644-5333
www.JoanKaylor.com Online Coaching and Counseling
Website: ocdla.com/telephone-online-therapy-ocd-anxiety/
Email: director@ocdla.com
310-824-5200 x4
Website: www.lmullertherapy.com
Email: lindsey@lmullertherapy.com
For US calls: 561-299-4911
biomaterix@gmail.com
Website: www.slightlyrobot.com
Email: matt@slightlyrobot.com
Website: www.skinpick.com
Email: info@skinpick.com
Website: www.StopSkinPickingCoach.com
Email: support@stopskinpickingcoach.com
www.TheWigEmporium.com
CustomerService@thewigemporium.com
http://twirlandsoothe.weebly.com
https://www.bfrb.org/find-help-support/find-a-salon
Hair Pulling
https://www.stoppulling.com/
https://trichotillomaniablog.com/ Trichotillomania Blogger. Naturally-Minded. Jesus Obsessed. Empath by Lesley
lesley@trichotillomaniablog.com
trichyhabit.tumblr.com trichy blog for support
Skin Picking
https://www.bfrb.org/find-help-support/find-a-support-group (TLC)
https://www.bfrb.org/find-help-support/find-a-salon (TLC)
https://pickingme.org/resources/online-support-group.html US
@pickingmefdn (Picking Me Foundation)
Breast Cancer
Raising Awareness of Male Breast Cancer
Support groups for breast cancer in men
National Breast Cancer Foundation
2600 Network Blvd. Suite 300 Frisco TX 75034
https://meditationstudioapp.com/
https://www.cancer.org/latest-news/common-questions-about-the-new-coronavirus-outbreak.html NBCF’s
https://www.nationalbreastcancer.org/covid-19-nbcf-response/ donate
Support groups for breast cancer
Breast Implants
http://www.discoverbreastimplantillness.com
Cancer
National Cancer Institute
www.cancer.gov
http://www.nci.nih.gov
Cleft Palate-craniofacial
Supportsmiletrain.org
1-800-572-1149
(ACPA) American Cleft Palate-craniofacial Association
info@acpa-cpf.org
Cutting
Reach Out Ages 14-25
S.A.F.E. Alternatives (Self Abuse Finally Ends)
Diabetes
American Diabetes Association
https://professional.diabetes.org/content-page/diabetes-support-resources
WI
ADAWI@diabetes.org
the Diabetes Site
https://blog.thediabetessite.greatergood.com/
Centers for Disease Control
https://www.cdc.gov/diabetes/prevention/index.html
Dermatology
The International Dermal Institute
Postgraduate Education in Professional Skincare
1535 Beachey Place, Carson, CA 90746
idi.corporate@dermalogica.com
888-292-5277
Eczema
National Eczema Association
https://www.inspire.com/groups/national-eczema-association/
National Eczema Society
helpline@eczema.org https://eczema.org/
Zainab Danjuna on YouTube
https://www.youtube.com/user/iambeezee/videos
Just a regular girl from London, with an itch that needed to be scratched (Eczema)
Glaucoma
Glaucoma Research Foundation
http://www.glaucoma.org accessed 01/24/2021
Glaucoma UK
http://glaucoma.uk accessed 01/24/2021
links to the site are encouraged & permission is not required
International Glaucoma Association
http://glaucoma-association.com accessed 01/24/2021
The Glaucoma Foundation
http://glaucomafoudation.org accessed 01/24/2021
online discussion group (APUP) Adult Patients Under Pressure
info on clinical Glaucoma trails
The National Eye Health Education Program
http://nei.nih.gov/nehep accessed 01/24/2021
Hearing Loss Association of America
Homepage - Hearing Loss Association of America
A charitable organization for those with hearing loss.
HIV/AIDS
National HIV/AIDS Hotline
(800) 342-2437
(800) 344-7432 (Spanish)
http://www.ashastd.org
Hyperhidrosis (Excessive Sweating)
International Hyperhidrosis Society
Maria Thomas blog launched in 2011 to raise hope and awareness one drop at a time.
Lupus
Lupus Foundation of America
Working to improve quality of life for those with lupus.
Largest nongovernmental, nonprofit funder of lupus research worldwide. Advancing scientific research for a cure.
US in Lupus
Support lupus patients in US
Lyme disease
U.S. National Lyme disease
(The U.S. National Lyme disease (lymedisease.org) has given permission for this listing). 09/15/2020
https://www.lymedisease.org/lyme-disease-support-groups/
Lyme disease association
research, education, prevention and patient support
https://lymediseaseassociation.org/resources
Melanoma
Stories of Lose and Survival with Melanoma
Melanoma Research Foundation
Find stories of patients and survivors.
Through the Lens
Menopause
North American Menopause Society
http://www.menopause.org
Disclaimer: This website is for informational purposes and not for diagnosis. More details.
Men's Health
Men’s Health Network
Email: info@menshealthnetwork.org
https://www.menshealthnetwork.org/
Movember Foundation
https://us.movember.com/mens-health/mental-health
National Alliance on Mental Illness
https://www.nami.org/help
Multiple Sclerosis
National Multiple Sclerosis Society
http://www.nmss.org
Piercings
Association of Professional Piercers
info@safepiercing.org
https://www.memberleap.com/members/directory/… (By State directory)
Psoriasis
The International Federation of Psoriasis Associations
info@ifpa-pso.com SWEDEN
National Psoriasis Foundation
(National Psoriasis Foundation has given permission for this listing though it was not needed.) 09/14/2020
Helpline 800-723-9166
https://www.psoriasis.org/talk-psoriasis/ support for psoriasis and psoriatic arthritis
Chronic Pain Kit for tips and resources to help you:
https://www.psoriasis.org/chronic-pain-kit/
education@psoriasis.org
getinfo@psoriasis.org
https://www.psoriasis.com/ (Free beneath the surface kit)
The Psoriasis Association
mail@psoriasis-association.org.uk
Email: mail@psoriasis-association.org.uk
Rosacea
International Rosacea Foundation
http://www.internationalrosaceafoundation.org/
National Rosacea Society
This organization has been around many years, doing research and providing information pertaining to rosacea. I was once on the newsletter mailing list.
(National Rosacea Society has given permission for this listing). 06/11/2020
Rosacea Support
http://rosacea-support.org this is a support forum started Oct 1998 by David Pascoe. The website also contains information on rosacea.
Talonted Lex
another rosacean who has a blog
Rosacea-Skin Positivity-Beauty
Advice Support Community
Skin Camouflage
British Association of Dermatologist
https://www.bad.org.uk/for-the-public/patient-information-leaflets/skin-camouflage
Email: admin@bad.org.uk
British Association of Skin Camouflage
https://skin-camouflage.net/
Skin Cancer
skincancer.org offers Robins Nest program for support and guidance to help you through your skin cancer diagnosis.
Spiritual
OHBAAT (One Human at a Time)
"Turning your New Normal into the ideal life". A religious based site to support your life after Post Corona. "Personal Media".
Thyroid Conditions
American Thyroid Association
a public site accessed 01/11/2021
If a description is to be provided with the link, ATA® would prefer the following wording:
The American Thyroid Association® (ATA)® , founded in 1923 as the American Goiter Association, is a nonprofit professional medical society comprised of physicians and scientists dedicated to enhancing the understanding of thyroid physiology and pathophysiology, improving diagnosis and treatment of thyroid diseases, and promoting the education of physicians, patients, and the public about thyroid disorders.
In the 95 years of its existence, the ATA has grown to more than 1500 clinicians and research scientists in the field of thyroidology. Thyroid diseases are among the most common disorders of the endocrine system, affecting almost 13 million Americans alone. Advances in understanding the causes and improving the clinical management of thyroid diseases are evolving at a rapid pace in the current era of biomedical discovery.
Hypothyroid Mom
mom blogging about hypothyroidism
https://hypothyroidmom.com/ accessed 01/09/2021
Thyroid Federation International
https://thyroid-fed.org/ accessed 01/09/2021
Vitiligo
E-mail: info@skin-camouflage.net
www.skin-camouflage.net
My Vitiligo Support Team
MyVitiligoTeam is not a medical referral site and does not recommend or endorse any particular Provider or medical treatment.
No information on MyVitiligoTeam should be construed as medical and/or health advice.
https://www.myvitiligoteam.com/
